Alfie is a lively nine-year-old who loves jokes and playing tricks on people. “He’s a cheeky boy who always wants to have fun,” says mum Samantha. But for Alfie, who has cerebral palsy, having fun is a daily struggle.
Alfie suffered devastating brain damage at birth and his muscles and his brain cannot ‘talk’ to each other so he is unable to control the way his body moves.
Alfie can see and hear, but he is profoundly affected in terms of physical movement, and cannot speak. He uses his eyes to communicate. Action Medical Research is funding research to help develop a systematic way to assess how children with severe cerebral palsy communicate which will improve understanding of children’s individual needs and abilities, so they get the right sort of support.
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